Turning the tide:
Plotting your hATTR-PN comeback

Pay close attention to these early hATTR-PN symptoms

Christine Chiti describes which symptoms help guide doctors to a hATTR-PN diagnosis.

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About the series

We listened to the conversations happening across the hATTR-PN community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from real people who truly understand.

Episodes

Getting out of the mental funk after a hATTR-PN diagnosis

Vince Nicholas shares his experience coming to terms with amyloidosis, highlighting the importance of mental health support and staying open with others.

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Finding peace in letting go of work after a hATTR-PN diagnosis

David Gregory reflects on leaving work, navigating change, and adjusting after diagnosis.

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Pay close attention to these early hATTR-PN symptoms

Christine Chiti describes which symptoms help guide doctors to a hATTR-PN diagnosis.

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Finding hope in the growing number of hATTR-PN treatments

David Gregory reflects on how treatment options for hATTR-PN have evolved over time and why staying informed remains key.

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To defy hATTR-PN, avoid stress at all costs

Vince Nicholas shares why he's intentional in curating a life with as little stress as possible.

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Resist pressure to rush hATTR-PN care decisions

Vince Nicholas shares why urgency is not always the answer to good care.

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Doctor Google isn’t always the answer with hATTR-PN

Christine Chiti explains why patients should contact their care team when something feels unclear.

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Squeezing the most out of hATTR-PN appointments

David Gregory explains the need to be an expert in one's own disease.

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Seizing your destiny with hATTR-PN

Vince Nicholas shares why self-advocacy is a means of control over hATTR-PN.

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