Vince Nicholas, a founding member of Amyloidosis UK, shares why patients should take an active role in their care, ask questions, and make decisions alongside their doctors.
Transcript
I think the main thing is to take control of your journey so that ensures that with medication and everything, you’ve got to be a 1-to-1 with your doctor.
Don’t treat them on a pedestal. Always question it and come to a decision together. That’s the key.
Don’t think they’re more special than you are because you’re not. You’re both going through a rare disease.
