From passive to proactive: Partnering in ATTR-CM care

Tips for securing a faster ATTR-CM diagnosis

Charles Schulman, MD, shares tips for how medical professionals can secure a faster ATTR-CM diagnosis, including what symptoms and red flags to look out for.

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About the Series

We listened to the conversations happening across the ATTR-CM community to uncover the questions and challenges that matter most. In this video series, community members and a doctor share their wisdom for how patients and their families can step up from being a passive recipient of care to becoming an empowered, proactive strategy partner.

Episodes

Encouraging ATTR-CM patients to ask more questions during clinic visits

Keyur Shah, MD encourages amyloidosis patients to ask as many questions to their doctors as they want, and shares tips for how to feel more comfortable doing so.

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No question about ATTR-CM is off the table

Carolyn Baldwin shares that asking any and all questions to her doctors is the best way to receive quality care.

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Tips for securing a faster ATTR-CM diagnosis

Charles Schulman, MD, shares tips for how medical professionals can secure a faster ATTR-CM diagnosis, including what symptoms and red flags to look out for.

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Caregiver strategies for navigating ATTR-CM appointments

Quan Boatman discusses how communication and tracking symptoms can help patients and caregivers better navigate doctor appointments.

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Sorting fact from fiction in ATTR-CM information online

Keyur Shah, MD, explains how online amyloidosis information can support conversations between patients and healthcare providers.

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‘Silly’ questions beat assumptions when grasping ATTR-CM’s reality

Carolyn Baldwin shares the importance of asking questions, understanding your body, and working with your care team to interpret information after diagnosis.

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When carpal tunnel may signal ATTR-CM

Charles Schulman, MD, discusses how amyloid cardiomyopathy may be identified, including early signs like bilateral carpal tunnel syndrome.

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Bringing your own research to your ATTR-CM care conversations

Keyur Shah, MD, encourages patients to bring research to their healthcare providers and highlights the importance of staying informed as ATTR-CM care continues to evolve.

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Be firm about pursuing normalcy during ATTR-CM hospital stays

Quan Boatman shares the challenges of a long hospital stay and how small changes, like rest and time outdoors, can support well-being.

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