From passive to proactive: Partnering in ATTR-CM care

Sorting fact from fiction in ATTR-CM information online

Keyur Shah, MD, explains how online amyloidosis information can support conversations between patients and healthcare providers.

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About the Series

We listened to the conversations happening across the ATTR-CM community to uncover the questions and challenges that matter most. In this video series, community members share their personal journeys, hard-won wisdom, and advice for navigating life with this condition. These are voices of experience from people who can best empathize.

Episodes

Caregiver strategies for navigating ATTR-CM appointments

Quan Boatman discusses how communication and tracking symptoms can help patients and caregivers better navigate doctor appointments.

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Sorting fact from fiction in ATTR-CM information online

Keyur Shah, MD, explains how online amyloidosis information can support conversations between patients and healthcare providers.

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‘Silly’ questions beat assumptions when grasping ATTR-CM’s reality

Carolyn Baldwin shares the importance of asking questions, understanding your body, and working with your care team to interpret information after diagnosis.

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When carpal tunnel may signal ATTR-CM

Charles Schulman, MD, discusses how amyloid cardiomyopathy may be identified, including early signs like bilateral carpal tunnel syndrome.

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Bringing your own research to your ATTR-CM care conversations

Keyur Shah, MD, encourages patients to bring research to their healthcare providers and highlights the importance of staying informed as ATTR-CM care continues to evolve.

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Be firm about pursuing normalcy during ATTR-CM hospital stays

Quan Boatman shares the challenges of a long hospital stay and how small changes, like rest and time outdoors, can support well-being.

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