Columns

My mom has never seen a neurologist, although she has a neurosurgeon who has been treating her spinal stenosis. She underwent spinal decompression surgery two…

When a family receives a diagnosis like hereditary ATTR amyloidosis, time seems to change. The future, which once felt certain, suddenly becomes unclear. Plans…

Earlier this month, I read something in the Amyloidosis News Today newsletter that rekindled my curiosity about the investigational gene-editing therapy nexiguran ziclumeran (nex-z).

Yesterday, I took a tumble. Hands full, I hit the arm of the sofa just below my ribs, then my knee hit the floor. “Way…

When my late husband, Aubrey, was living with hereditary ATTR (hATTR) amyloidosis, no two days were ever alike. One day, he might manage reasonably…

Note: This column describes the author’s and his late brother’s own experiences with off-label diflunisal. Not everyone will have the same response to treatment. Consult…

In the middle of a heat wave in the United States, I flew to Taiwan to visit my parents. Even though I had just acclimated…

When my late husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, our world changed overnight. We had a diagnosis, but not a…

I joined my mom’s cardiology appointment remotely last week. It marked the one-year anniversary of her diagnosis, and her doctor ordered a few tests to…

When people think about hereditary transthyretin amyloidosis (hATTR), they often focus on the physical decline of the patient. What is less visible is the…