For neuropathy patients and caregivers, having a purpose in life may go a long way toward helping us manage peripheral neuropathy. Many familial amyloid…
Columns
HATTR-PN
ColumnsHow feelings of gratitude for the past are helping me move forward
It’s another stunning summer day here in New Zealand’s Waikato region. We’ve been blessed all week with clear skies and a warm breeze blowing through the…
HATTR-PN
ColumnsMy late husband’s legacy lives on in my children
December is a month of university graduation here in New Zealand. All the hard work, blood, sweat, and tears conclude in a cacophony of salutations…
According to the Murdoch Children’s Research Institute, there are more than 7,000 rare genetic diseases in the world, mostly affecting children. Additionally, about 300 million…
HATTR-PN
ColumnsI’m grateful for my children’s support as I find love again
As a columnist for Amyloidosis News Today since October 2020, I’ve written about various topics, all related to my experience caring for a spouse…
HATTR-PN
ColumnsHaving a backup plan for when caregivers get sick
About a month ago, my father-in-law came down with what seemed like a cold. But his condition gradually worsened, which sent him to the hospital.
HATTR-PN
Columns4 lessons I learned while caregiving for a chronically ill spouse
My late husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013 and passed away on May 22, 2022. Those nine years were spent…
HATTR-PN
ColumnsHow neuropathy caregivers become a proxy for emotional suffering
For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may…
HATTR-PN
ColumnsMoving into a new season of life with happiness
Over a year ago, I met someone. Darren James came into my life at a point when I was questioning whether I could build a…
HATTR-PN
ColumnsOur local association has a part to play in World Amyloidosis Day
Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association, I’m excited to use this…
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