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Encouraging ATTR-CM patients to ask more questions during clinic visits

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Hospital stays

ATTR-CM research

Carpal tunnel

'Silly' questions

Online information

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Tips for diagnosis

Carolyn Baldwin

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Keyur Shah, MD, a cardiologist, encourages amyloidosis patients to ask as many questions to their doctors as they want, and shares tips for how they might feel more comfortable in clinical settings.

Transcript

When I have been giving presentations to medical grand rounds or to medical students and residents, what I say to people is that they should be aware of some of the early symptoms, or of the what I call red flags, for amyloid cardiomyopathy, and to do the appropriate testing once you see those red flags.

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In terms of advising the general public, older people, or people who have symptoms of peripheral neuropathy — you know, tingling in their hands and feet — bilateral carpal tunnel syndrome, lumbar spinal stenosis, trigger fingers, should think about the diagnosis because if you never think about it, no one will ever make that diagnosis.

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No question about ATTR-CM is off the table
Tips for securing a faster ATTR-CM diagnosis
Caregiver strategies for navigating ATTR-CM appointments
Sorting fact from fiction in ATTR-CM information online
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