Heart to Heart Connection - a Column by Jade River

When I first started caring for my mom, I spent more time studying her condition, hereditary transthyretin amyloid cardiomyopathy, than actually caring for her.

After 17 years in the U.S., I decided to move back to my home country of Taiwan to be closer to my parents and care…

Now that my mom sees a neurologist in Taipei, Taiwan, she travels for her appointments from our hometown to the hospital by public transportation. The…

My mom has never seen a neurologist, although she has a neurosurgeon who has been treating her spinal stenosis. She underwent spinal decompression surgery two…

Earlier this month, I read something in the Amyloidosis News Today newsletter that rekindled my curiosity about the investigational gene-editing therapy nexiguran ziclumeran (nex-z).

In the middle of a heat wave in the United States, I flew to Taiwan to visit my parents. Even though I had just acclimated…

I joined my mom’s cardiology appointment remotely last week. It marked the one-year anniversary of her diagnosis, and her doctor ordered a few tests to…

A good friend of mine sadly passed away last month in a hospital in New York City. When I received the news, I couldn’t believe…

I was sick for more than a week recently. The slow recovery gave me a glimpse into a chronic disease patient’s point of view —…

Illness casts a shadow over the lives of both the patient and the caregiver. In my family’s situation, my mom, Feng-Ying Wu, is the patient,…