Heart to Heart Connection – Jade River

Jade River was born and raised in Taiwan and has lived in the United States since 2009. Her mother was diagnosed with cardiac amyloidosis in 2025, and the hereditary type was later confirmed. Jade underwent genetic testing, which confirmed she also carries the transthyretin gene mutation. She lives in New York and is an amateur potter.

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Understanding the patient’s perspective in a fast-paced world

I was sick for more than a week recently. The slow recovery gave me a glimpse into a chronic disease patient’s point of view —…

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The challenges of adapting to life with chronic illness for patient and caregiver

Illness casts a shadow over the lives of both the patient and the caregiver. In my family’s situation, my mom, Feng-Ying Wu, is the patient,…

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Mental flexibility is key to coping with my role as a caregiver

When I first found myself in an intense caregiving role last year, I promised to stay strong for my mom, the patient, and my dad,…

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The long journey to an amyloidosis diagnosis can be full of setbacks

On Mother’s Day last year, by chance or instinct, I was awake past midnight when I received the message that my mom, Feng-Ying Wu, had…

Heart to Heart Connection – Jade River

Living in anticipation of possibly developing cardiac amyloidosis

Understanding the patient’s perspective in a fast-paced world

The challenges of adapting to life with chronic illness for patient and caregiver

Mental flexibility is key to coping with my role as a caregiver

The long journey to an amyloidosis diagnosis can be full of setbacks

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