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Oct. 26 is World Amyloidosis Day, and advocates around the world are joining together to shine a light on transthyretin amyloid cardiomyopathy (ATTR-CM) and…
Featured Articles
An international team of experts has published new guidelines for diagnosing and treating hereditary transthyretin amyloidosis with polyneuropathy (hATTR-PN) and forms of the disease that affect both the nerves and heart. The recommendations “underscore the critical importance of early diagnosis, provide guidance on proactive monitoring pre-symptomatic patients and carriers,…
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Most people with transthyretin amyloidosis (ATTR) in China have a hereditary form of the rare disease and experience symptoms of both ATTR with polyneuropathy…
Discussion
Now that my mom sees a neurologist in Taipei, Taiwan, she travels for her appointments from our hometown to the hospital by public transportation. The…
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Attruby (acoramidis) was associated with better heart-related outcomes and a lower risk of hospitalization than Vyndamax (tafamidis) among people with transthyretin amyloid…
Discussion
Some days on the calendar remind us of what matters most — and why we should fight for it. World Amyloidosis Day, held Oct.
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about FAP is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your FAP journey.
Treatment
There is no cure for FAP yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.