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People with transthyretin amyloid cardiomyopathy (ATTR-CM) enrolled in more recent clinical trials show less advanced disease and improved survival compared with those in earlier studies,…
Featured Articles
A good friend of mine sadly passed away last month in a hospital in New York City. When I received the news, I couldn’t believe it. It took a few days to swallow the bitter news, and perhaps several weeks to digest it. During that time, I thought about my…
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New analyses back the use of the approved therapy Amvuttra (vutrisiran) as an initial treatment for people with transthyretin amyloidosis with cardiomyopathy (ATTR-CM)…
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The injection therapy Wainua (eplontersen) “offers a vital ray of hope” for people living with hereditary transthyretin amyloidosis with polyneuropathy (hATTR-PN), an international…
Discussion
I was sick for more than a week recently. The slow recovery gave me a glimpse into a chronic disease patient’s point of view —…
Discussion
New analyses suggest Attruby (acoramidis) may reduce the risk of outpatient worsening heart failure, with differences seen within 30 days and sustained through 30…
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Newly diagnosed? Start your journey here.
Need to know
Becoming educated and informed about FAP is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
Personal experiences
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your FAP journey.
Treatment
There is no cure for FAP yet, but there are treatments that can help manage the disease. Learn more about the approved and experimental therapies here.