Sunrise Sunset – a Column by Jaime Christmas

Since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, my journey as his caregiver has taken me to some…

In his book “1984,” George Orwell wrote, “Of pain you could wish only one thing: that it should stop. Nothing in…

As I write this, my husband, Aubrey, is undergoing surgery to remedy his congested nasal passages, which have reduced the oxygen flow into his lungs.

Leading an association that supports and advocates for rare disease patients while being a caregiver to one certainly has shaped my outlook on life. To…

One of my greatest accomplishments in life is being a mother to four amazing individuals. I cannot give enough credit to my kids for handling…

Neurologist Donn Dexter wrote an article last year for the Mayo Clinic titled “5 tips to keep your brain healthy.” I thought it…

A few days ago, I had the honor of presenting at this year’s Patients as Partners Europe virtual conference, an industry forum centered on…

Earlier today, I had the privilege of listening to a fellow carer share the mental, emotional, and physical trials she experienced while supporting…

It is a summer morning here in New Zealand. As I write this, a cool, gentle breeze blows through the house, and I am being…

Sleep is an essential part of life that comes so naturally, from the moment we come into being. Yet sometimes we forget the impact that…