It is interesting how human emotions can fluctuate like the ebb and flow of the tide. I am usually upbeat and composed, but at the…
Sunrise Sunset – a Column by Jaime Christmas
Those of us who are caregivers have many of the same underlying goals. But while we all care for our ill loved ones, our…
HATTR-PN
ColumnsThe Importance of Mental Pliability for Caregivers
I returned to the gym this week to work out. The last time I hit exercise classes and equipment was in 2016, shortly before my…
HATTR-PN
ColumnsAs Caregivers, Anticipating the Worst Allows Us to Be Prepared
As a caregiver, have you ever felt like you’ve been thrown into the deep end and are treading water just to survive? Perhaps this overwhelming…
HATTR-PN
ColumnsHow to Prevent Burnout When Caring for a Loved One
Today, I’d like to talk about caregiver burnout, which extends beyond the physical burnout of completing various caregiving tasks. It also entails more than…
HATTR-PN
ColumnsDoing Life Together When Diagnosed With Amyloidosis
In my role as a leader of the New Zealand Amyloidosis Patients Association, I’ve had the privilege of forging relationships with many wonderful human…
HATTR-PN
ColumnsStaying Positive as Someone Affected by Rare Disease
No matter what you’re going through or where you are, know you are not alone. Suffering from a rare illness like hereditary ATTR amyloidosis (hATTR)…
HATTR-PN
ColumnsI’m Hoping for a Better Future for Those With Amyloidosis
If you are a fresh set of eyes and have newly stumbled onto my column, welcome to the world of an amyloidosis caregiver. My husband…
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ColumnsMy Husband and I Are Finding a New Balance in Life With Amyloidosis
I was in the car with my daughters earlier today, and as we turned onto a busy street, we saw cars already lining up to…
HATTR-PN
ColumnsSufferers Are More Than Their Afflictions
Lately I’ve had to remind my husband that he is not his disease. Aubrey was diagnosed in 2013 with hereditary ATTR amyloidosis, and after…
Recent Posts
- Study suggests doctors test hATTR patients for nerve damage
- Imaging data show approved ATTR-CM therapy improves heart structure
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- 1 ATTR-CM drug may best another for preserving heart health, analysis finds
- New questionnaire may help flag early transition to symptomatic hATTR-PN