Being diagnosed with a genetic disease during adulthood can be a life-changing event. Between managing your symptoms and addressing the challenges that the disease poses…
Health Insights
Genetic Testing for FAP
Genetic testing is a medical procedure that can determine whether you have changes in your genes or chromosomes that could cause disease. This type of…
Support Groups for People with FAP and Why They’re Important
When you’re diagnosed with a disorder as rare as familial amyloid polyneuropathy (FAP), support groups can help you feel less isolated and better…
How Will FAP Affect My Lifespan?
If you’ve been diagnosed with familial amyloid polyneuropathy (FAP), you may be wondering about how the disease might affect the length of your…
I’ve Been Diagnosed with FAP. Now What?
You have learned that you have familial amyloid polyneuropathy (FAP), a rare, inherited, progressive disorder caused by abnormal deposits of proteins around peripheral nerves…
How to Stay Motivated with a Chronic Disease like FAP
Because the first symptoms of familial amyloid polyneuropathy (FAP) usually appear after a person is well into adulthood, its diagnosis can be quite a…
Why Is Genetic Counseling Important for FAP Patients?
If you or a family member are diagnosed with familial amyloid polyneuropathy (FAP), a rare progressive disease that affects nerves and other tissues, you…
Someone in My Family Has FAP; Should I Also Be Tested?
You may have a family history of familial amyloid polyneuropathy (FAP) and be wondering if you might also have the disease. To make an…
Strategies to Improve Quality of Life in FAP
Familial amyloid polyneuropathy (FAP) is known to affect a person’s quality of life, particularly through the damage it can do to the autonomic nervous system,…
Recent Posts
- New analyses back Amvuttra as first-line treatment for complex heart cases
- Injection therapy Wainua offers ‘ray of hope’ for hATTR-PN patients
- Understanding the patient’s perspective in a fast-paced world
- Attruby may reduce outpatient heart failure worsening in ATTR-CM
- Being a caregiver means becoming an expert on your loved one’s disease