After a hiatus of three years, it is with a mix of emotions that I return to writing this column. Allow me to reintroduce…
Columns
HATTR-PN
ColumnsMy late husband left behind a legacy of goodness
On Sunday, March 19, I appeared on New Zealand’s 1News to discuss my journey as a caregiver to my late husband, Aubrey, who had…
HATTR-PN
ColumnsA year later, I’m ready to move forward after the loss
This column has been a year in the making. When my late husband, Aubrey, passed away in May 2022 from hereditary ATTR amyloidosis,…
HATTR-PN
ColumnsLearning to face a new year without my husband
In the blink of an eye, we’re already approaching the third month of 2023. For me, the ushering in of a new year came with…
HATTR-PN
ColumnsHow We Navigated My Late Husband’s Amyloidosis Diagnosis
I have previously written about the importance of staying positive despite our circumstances. Whether you are a patient or a caregiver to a…
HATTR-PN
ColumnsMonths After Losing My Husband, I’m Finding My Footing Once Again
This column will be my 94th since starting “Sunrise, Sunset.” My caregiving experience has taken me through many ups and downs and countless…
HATTR-PN
ColumnsPromoting Amyloidosis Awareness to Create a Better Future
Late last week, to drive disease awareness, I took to the streets in downtown Auckland, New Zealand, and asked random people if they had heard…
HATTR-PN
ColumnsFinding Silver Linings in Life, Even After Suffering a Loss
It’s been over four months since I lost my husband, Aubrey, to hereditary ATTR amyloidosis. The vacuum he’s left behind in the lives…
HATTR-PN
ColumnsWhy Advocacy Is Important for New Zealanders With Rare Diseases
Life is full of twists and turns. I was a caregiver for nine years until this past May, when my husband passed away from…
HATTR-PN
ColumnsHow the Pharmaceutical Industry Can Help Patient Advocates
I recently attended an amyloidosis scientific conference in Heidelberg, Germany, that was a productive and empowering experience. As a former caregiver to a spouse…
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