Columns

After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role.

I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I…

On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives…

In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness…

After almost three years of not seeing my family, I’m finally back in Malaysia to spend some quality time with my father, siblings, and children.

For the first time since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, his care team brought up the subject of…

As a caregiver to a spouse with hereditary ATTR amyloidosis, I’ve become familiar with our local hospital. The countless appointments and stays that…

Having a chronic illness is never easy, both for the sufferers and their caregivers. My name is Jaime Christmas, and my husband, Aubrey, started feeling…

As I write this, my husband is in the hospital due to complications of hereditary ATTR amyloidosis. Aubrey, 58, was diagnosed in 2013, and…

Every so often, my husband, Aubrey, and I go through this exercise where we evaluate our circumstances in life and decide if we should shake…