In my columns, I share my experience as a caregiver to a spouse who suffered from hereditary ATTR amyloidosis. Whenever I sit down…
Columns
HATTR-PN
ColumnsLiving in the Present Can Help Us Better Manage the Future
After I finish writing this column, I will meet a few friends for dinner. But socializing without my husband beside me still feels foreign.
HATTR-PN
ColumnsEarly Diagnosis, Treatment Access, and Self-advocacy Are the Pillars of Hope With ATTR Amyloidosis
It has been very encouraging to witness treatment advancements that target ATTR amyloidosis. Although a cure is not currently available, pharmaceutical research shows promise…
HATTR-PN
ColumnsLike David Attenborough, I Want to Use My Voice to Make a Difference
I recently watched a documentary narrated by British naturalist David Attenborough about how climate change and deforestation negatively affect animal life on our…
HATTR-PN
ColumnsI Learned the True Value of Friendship Amid Difficult Times
“Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when…
HATTR-PN
ColumnsAppreciating Challenges Can Help Partners Form a Special Bond
I lost my husband, Aubrey, on May 22. This period of adapting to him being gone has been somewhat challenging for me. Although I…
HATTR-PN
ColumnsThe Importance of Thinking in Advance About End-of-life Arrangements
If you are new to my column, my name is Jaime, and I was a caregiver to my husband, Aubrey, until he passed…
HATTR-PN
ColumnsMaking the Right Decision at the Beginning Helped Me in the End
Some time has passed since I lost my husband on May 22. For nine years, Aubrey suffered from hereditary ATTR amyloidosis. Despite the…
HATTR-PN
ColumnsIn This Passageway of Grief, I Also Find Hope
After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role.
HATTR-PN
ColumnsNow That the End Is Here, I Think Everything Will Be All Right
I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I…
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