My mother-in-law has always valued her autonomy. The pain of her peripheral neuropathy, the hallmark symptom of familial amyloid polyneuropathy (FAP), leads…
Columns
HATTR-PN
ColumnsWhy communication is important for amyloidosis patients, caregivers
It has been 17 months since my husband, Aubrey, passed away due to complications of hereditary ATTR amyloidosis. Following his diagnosis in…
HATTR-PN
ColumnsSetting goals may help patients get past their barriers to treatment
My mother-in-law, who has familial amyloid polyneuropathy (FAP), consistently adheres to her prescribed treatments, which has improved her mobility and overall mood. Because…
HATTR-PN
ColumnsWhy is medication adherence important in treating FAP?
Medication adherence is crucial to managing familial amyloid polyneuropathy (FAP). Left untreated, FAP can have life-threatening consequences. As an article published…
HATTR-PN
ColumnsAfter 3 years, a return to my ‘Rumination and Response’ column
After a hiatus of three years, it is with a mix of emotions that I return to writing this column. Allow me to reintroduce…
HATTR-PN
ColumnsMy late husband left behind a legacy of goodness
On Sunday, March 19, I appeared on New Zealand’s 1News to discuss my journey as a caregiver to my late husband, Aubrey, who had…
HATTR-PN
ColumnsA year later, I’m ready to move forward after the loss
This column has been a year in the making. When my late husband, Aubrey, passed away in May 2022 from hereditary ATTR amyloidosis,…
HATTR-PN
ColumnsLearning to face a new year without my husband
In the blink of an eye, we’re already approaching the third month of 2023. For me, the ushering in of a new year came with…
HATTR-PN
ColumnsHow We Navigated My Late Husband’s Amyloidosis Diagnosis
I have previously written about the importance of staying positive despite our circumstances. Whether you are a patient or a caregiver to a…
HATTR-PN
ColumnsMonths After Losing My Husband, I’m Finding My Footing Once Again
This column will be my 94th since starting “Sunrise, Sunset.” My caregiving experience has taken me through many ups and downs and countless…
Recent Posts
- Scientists ID blood markers that predict heart risk in ATTR-CM
- Navigating amyloidosis treatment can be challenging for older adults
- Tiny skin biopsies may help diagnose transthyretin amyloidosis: New study
- Early diagnosis, treatment improves survival in ATTR-CM: Study
- FDA lifts clinical hold on Phase 3 trial of nex-z for hATTR-PN