As we head into the Christmas season, I want to be mindful that not all of my readers celebrate the holiday. Additionally, I know not…
Columns
HATTR-PN
ColumnsI’m Bringing Christmas Joy, Despite the Challenges We Face
I am adamant about not letting the COVID-19 pandemic and the ongoing issues with my husband’s health dampen our Christmas spirit. This year, I…
HATTR-PN
ColumnsFinding Meaning in Life With a Genetic Disease
My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development: Clinical, Scientific, Patient, and Caregiver…
HATTR-PN
ColumnsI’m Embracing Optimism as We Approach the New Year
2021 has been a character-building year for me. I experienced challenges like never before, and I’m not just referring to the ones associated with the…
HATTR-PN
ColumnsWhy Intentionality Matters When Spending Time With an Ill Loved One
I spent half the morning figuring out our plan for Christmas. In recent years, it’s been a tradition for the whole family — including pets…
This is my 48th column since I began this providential opportunity as a writer at Amyloidosis News Today. To be given the platform to…
HATTR-PN
ColumnsI’ve Experienced 3 Phases of Caregiving
Life experience plays an integral role in shaping our behavior and thinking. I have come a long way from being an unsettled 18-year-old to a…
HATTR-PN
ColumnsEven Before the Pandemic, We Knew Social Distancing and Isolation
New Zealand was largely able to avoid the effects of the COVID-19 pandemic, until now. The contagious nature of the delta variant and the high…
HATTR-PN
ColumnsCooking Videos Are Helping My Husband Beat His Food Aversion
My husband, Aubrey, has begun watching cooking videos on YouTube to overcome an aversion to food and eating. We are both from Malaysia, where f…
HATTR-PN
ColumnsThe Importance of Making Memories and Spending Time With My Husband
As we enter the second half of October, I’m not quite sure how the end of the year has arrived so quickly. Time flies while…
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