I lost my mother in May. Even as I type those words, I have not fully come to terms with it, as I have yet…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsTo Learn About hATTR Amyloidosis, Turn to Those With Experience
If you are a longtime caregiver for a loved one with hereditary ATTR amyloidosis, you are probably knowledgeable about the condition. My name is…
HATTR-PN
ColumnsStaying the Caregiving Course Using Humor
I look for humor in every situation. Humor can be lifesaving in times of despair. U.S. Congregational minister Henry Ward Beecher said, “A person…
HATTR-PN
ColumnsHow Caregivers Can Cultivate Endurance and Find Purpose
The 3rd European ATTR Amyloidosis Meeting for Patients and Doctors was held virtually on Sept. 6-8. Because the New Zealand Amyloidosis Patients Association,…
HATTR-PN
ColumnsHow Labels Can Influence Our Actions
My husband and I were married on March 15, 1995. Looking back at these 26 years, I can see the gray and black stain of…
HATTR-PN
ColumnsCaring for Yourself as a Caregiver
The melodic chirping of birds outside the window is louder this morning. This is because Auckland, the city in New Zealand where I live with…
HATTR-PN
ColumnsHow Caregivers Can Be Aware of the Swinging Pendulum of Emotions
It is interesting how human emotions can fluctuate like the ebb and flow of the tide. I am usually upbeat and composed, but at the…
Those of us who are caregivers have many of the same underlying goals. But while we all care for our ill loved ones, our…
HATTR-PN
ColumnsThe Importance of Mental Pliability for Caregivers
I returned to the gym this week to work out. The last time I hit exercise classes and equipment was in 2016, shortly before my…
HATTR-PN
ColumnsAs Caregivers, Anticipating the Worst Allows Us to Be Prepared
As a caregiver, have you ever felt like you’ve been thrown into the deep end and are treading water just to survive? Perhaps this overwhelming…
Recent Posts
- ATTR amyloidosis treatment exists, but for many, it’s not accessible
- New study links TTR mutation to nerve-related ATTR and better survival
- FDA lifts hold on clinical trial testing gene-editing therapy for ATTR-CM
- Supporters to ‘Light the Night’ this month for amyloidosis awareness
- Heart markers, nerve involvement linked to worse hATTR-CM outcomes