Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association, I’m excited to use this…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsHow I’m living a purpose-driven life after losing my husband
Since January, the amyloidosis association I lead here in New Zealand has seen our patient numbers grow like never before, primarily because of newer …
HATTR-PN
ColumnsFinding purpose helped me navigate grief after losing my husband
It’s winter here in New Zealand. I woke up to a thin sheet of ice covering the deck, staying frozen just long enough to glint…
HATTR-PN
ColumnsHow I’m striving to be happy, and succeeding, years after a loss
I’m happy. That’s the best way to describe my state at this stage of my life. When my husband, Aubrey, passed away on May…
HATTR-PN
ColumnsLeaving the home where I raised a family and served as caregiver
I’ve moved! It’s exciting, but the move was daunting because of the sheer amount of work that went into clearing out items from a place…
HATTR-PN
ColumnsFinding happiness in life after the loss of my husband
It’s summer here in Auckland, New Zealand, and as I look out the window at my weed-filled lawn, not only am I reminded that the…
HATTR-PN
ColumnsMy continued advocacy will lead to new amyloidosis treatment in N.Z.
I recently had the pleasure of attending an Amyloidosis Alliance conference in Madrid, which brought together advocates from around the world who serve…
HATTR-PN
ColumnsWhy communication is important for amyloidosis patients, caregivers
It has been 17 months since my husband, Aubrey, passed away due to complications of hereditary ATTR amyloidosis. Following his diagnosis in…
HATTR-PN
ColumnsMy late husband left behind a legacy of goodness
On Sunday, March 19, I appeared on New Zealand’s 1News to discuss my journey as a caregiver to my late husband, Aubrey, who had…
HATTR-PN
ColumnsA year later, I’m ready to move forward after the loss
This column has been a year in the making. When my late husband, Aubrey, passed away in May 2022 from hereditary ATTR amyloidosis,…
Recent Posts
- For East Asian patients with ATTR-CM, Amvuttra is safe, extends survival
- Finger tapping test catches early, subtle nerve damage in hATTR-PN
- Anniversary of mom’s amyloidosis diagnosis brings hope, gratitude
- TTR gene mutation may not be nerve damage cause in certain hATTR cases
- Bone hormone levels signal heart disease severity in ATTR-CM: Study