Sunrise Sunset – a Column by Jaime Christmas

I will always remember May 12 as a special day. That’s because last week, I spent that day with my daughter doing something close to…

It has been a week since my husband, Aubrey, and I received our first doses of the COVID-19 vaccine. We feel fortunate to have…

When you live with a rare illness, it can affect every facet of life. I am a carer to my husband, Aubrey, who has…

One activity I really enjoy doing is going for coffee dates with my girlfriends. This allows me to take a break from my normal routine…

Some life events create impressions that stay with us forever. Our experiences, encounters, and journeys mold our character and hone our personality, making each…

2013 was a landmark year for my husband, Aubrey, and me. That October, we received confirmation that Aubrey has hereditary ATTR amyloidosis. The results were…

Since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, my journey as his caregiver has taken me to some…

In his book “1984,” George Orwell wrote, “Of pain you could wish only one thing: that it should stop. Nothing in…

As I write this, my husband, Aubrey, is undergoing surgery to remedy his congested nasal passages, which have reduced the oxygen flow into his lungs.

Leading an association that supports and advocates for rare disease patients while being a caregiver to one certainly has shaped my outlook on life. To…