The daily life of a familial amyloid polyneuropathy (FAP) caregiver isn’t always one of set routines. With the nature of the ailment and its…
Rumination and Response - a Column by Ezekiel Lim
HATTR-PN
ColumnsResponding to my mother-in-law’s rheumatoid arthritis diagnosis
In my last column, I mentioned that my mother-in-law was recently diagnosed with rheumatoid arthritis. She already suffers from the symptoms of familial amyloid…
HATTR-PN
ColumnsWhy patients should tap into a sense of purpose in the new year
For neuropathy patients and caregivers, having a purpose in life may go a long way toward helping us manage peripheral neuropathy. Many familial amyloid…
HATTR-PN
ColumnsHaving a backup plan for when caregivers get sick
About a month ago, my father-in-law came down with what seemed like a cold. But his condition gradually worsened, which sent him to the hospital.
HATTR-PN
ColumnsHow neuropathy caregivers become a proxy for emotional suffering
For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may…
HATTR-PN
ColumnsHow caregivers can help neuropathy patients enjoy cooking
A diagnosis of familial amyloid polyneuropathy (FAP), or the onset of peripheral neuropathy symptoms, may cause patients to worry about missing out…
HATTR-PN
ColumnsHow my mother-in-law’s dog helped her cope with FAP
The companionship of dogs and other pets may benefit patients by helping them cope as they manage the symptoms of familial amyloid polyneuropathy (FAP).
HATTR-PN
ColumnsJuggling priorities can be a struggle for family caregivers
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At…
HATTR-PN
ColumnsSleep benefits are important to peripheral neuropathy patients
The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to…
HATTR-PN
ColumnsNavigating the shift from winter to spring as a neuropathy caregiver
March signals a change in seasons, often accompanied by a change in temperatures. Caregivers of patients with familial amyloid polyneuropathy (FAP) must be mindful…
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