If you or a loved one has familial amyloid polyneuropathy (FAP), massage therapy may help reduce the impact of peripheral neuropathy symptoms and …
Health Insights
HATTR-PN
Health InsightsRecreational Therapy for FAP
Having a chronic progressive disorder such as familial amyloid polyneuropathy (FAP) can be both stressful and isolating. Â Recreational therapy is a form of treatment…
HATTR-PN
Health InsightsFirst ATTR Patient Dosed in Phase 1 Trial of Intellia’s Gene-editing Therapy NTLA-2001
The first patient has been dosed in a Phase 1 clinical trial evaluating NTLA-2001, Intellia Therapeutics’ investigational gene-editing therapy for the treatment…
Tips for Managing Stress When You Have FAP
Familial amyloid polyneuropathy (FAP) is a progressive disease caused by deposits of amyloid fibrils in nerve cells and organs. As a result, patients experience severe…
Independent Living When You Have FAP
Finding out you have a rare genetic disease such as familial amyloid polyneuropathy (FAP) can be unsettling, especially if you live alone or planning…
FAP and Your Kidneys
People with familial amyloid polyneuropathy (FAP) may well have problems with their kidneys. Without treatment, these can lead to serious complications. How does…
Magnetic Resonance Imaging (MRI) in FAP: What Does It Involve?
If your doctor suspects you have familial amyloid polyneuropathy (FAP), you will be asked to undergo diagnostic tests to confirm the presence of…
Digestive Problems in FAP – How Do You Deal With Them?
A majority of familial amyloid polyneuropathy (FAP) patients report problems with their digestive system. Here is some information about how FAP affects the digestive system,…
Tips for Managing Fatigue When You Have FAP
Fatigue is defined as extended periods of exhaustion or lack of energy and can be a symptom for patients with…
Tissue Biopsy for FAP: What to Expect
A tissue biopsy is one of several tests doctors may use to confirm a diagnosis of familiar amyloid polyneuropathy (FAP), a rare disease…
Recent Posts
- Scientists ID blood markers that predict heart risk in ATTR-CM
- Navigating amyloidosis treatment can be challenging for older adults
- Tiny skin biopsies may help diagnose transthyretin amyloidosis: New study
- Early diagnosis, treatment improves survival in ATTR-CM: Study
- FDA lifts clinical hold on Phase 3 trial of nex-z for hATTR-PN