I recently accompanied my husband, Aubrey, to an appointment with a specialist at the hospital and noticed a sign taped to the wall in the…
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HATTR-PN
ColumnsWhy Rare Disease Day Matters to the Amyloidosis Community
When I married my husband, Aubrey, I knew a hereditary and life-threatening disease affected some members of his family, but I had little other information…
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ColumnsAn Amyloidosis Toolkit Helps Us Navigate Tough Times
Every week I sit at my desk and ponder what I should write about. As I stare out the window that faces my street,…
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ColumnsEmbracing Our Past Strengthens Us on Our Chronic Illness Journey
Lunar New Year celebrations, which began on Feb. 1, last for 15 days. As I write this on the eve of that date, I am…
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ColumnsTending to Plants Offers Me Comfort as a Caregiver
I recently counted the number of plants in my house and came up with 45. I’ll admit I’ve gone slightly overboard, but in my defense,…
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ColumnsLove It or Hate It, Exercise Is Important for Caregivers
My alarm goes off at 5:30 every morning, and I mute it as quickly as possible to avoid waking my husband, Aubrey (if he’s even…
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ColumnsThe Ups and Downs of Sleeplessness
Has the COVID-19 pandemic been keeping all of us up at night? According to an online forum by the Harvard T.H. Chan School of…
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ColumnsWarm Weather Brings Both Discomfort and Gratitude
We have had warm summer weather here in Auckland, New Zealand, the City of Sails. It’s been clear and sunny, and…
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ColumnsAs a Caregiver, I Want to Be Mindful When Misunderstandings Happen
A few days before the new year, I cleaned my backyard deck and accidentally toppled a cactus plant onto my foot. While I walked away…
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ColumnsWe Must Make Lasting Memories, Through Whatever Trials We Face
Our Christmas tree is almost 24 years old, and it has traveled the world with us. I still remember the day I went shopping for…
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