About a month ago, my father-in-law came down with what seemed like a cold. But his condition gradually worsened, which sent him to the hospital.
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HATTR-PN
Columns4 lessons I learned while caregiving for a chronically ill spouse
My late husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013 and passed away on May 22, 2022. Those nine years were spent…
HATTR-PN
ColumnsHow neuropathy caregivers become a proxy for emotional suffering
For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may…
HATTR-PN
ColumnsMoving into a new season of life with happiness
Over a year ago, I met someone. Darren James came into my life at a point when I was questioning whether I could build a…
HATTR-PN
ColumnsOur local association has a part to play in World Amyloidosis Day
Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association, I’m excited to use this…
HATTR-PN
ColumnsHow I’m living a purpose-driven life after losing my husband
Since January, the amyloidosis association I lead here in New Zealand has seen our patient numbers grow like never before, primarily because of newer …
HATTR-PN
ColumnsHow caregivers can help neuropathy patients enjoy cooking
A diagnosis of familial amyloid polyneuropathy (FAP), or the onset of peripheral neuropathy symptoms, may cause patients to worry about missing out…
HATTR-PN
ColumnsHow my mother-in-law’s dog helped her cope with FAP
The companionship of dogs and other pets may benefit patients by helping them cope as they manage the symptoms of familial amyloid polyneuropathy (FAP).
HATTR-PN
ColumnsFinding purpose helped me navigate grief after losing my husband
It’s winter here in New Zealand. I woke up to a thin sheet of ice covering the deck, staying frozen just long enough to glint…
HATTR-PN
ColumnsJuggling priorities can be a struggle for family caregivers
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At…
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