For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may…
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HATTR-PN
ColumnsMoving into a new season of life with happiness
Over a year ago, I met someone. Darren James came into my life at a point when I was questioning whether I could build a…
HATTR-PN
ColumnsOur local association has a part to play in World Amyloidosis Day
Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association, I’m excited to use this…
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ColumnsHow I’m living a purpose-driven life after losing my husband
Since January, the amyloidosis association I lead here in New Zealand has seen our patient numbers grow like never before, primarily because of newer …
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ColumnsHow caregivers can help neuropathy patients enjoy cooking
A diagnosis of familial amyloid polyneuropathy (FAP), or the onset of peripheral neuropathy symptoms, may cause patients to worry about missing out…
HATTR-PN
ColumnsHow my mother-in-law’s dog helped her cope with FAP
The companionship of dogs and other pets may benefit patients by helping them cope as they manage the symptoms of familial amyloid polyneuropathy (FAP).
HATTR-PN
ColumnsFinding purpose helped me navigate grief after losing my husband
It’s winter here in New Zealand. I woke up to a thin sheet of ice covering the deck, staying frozen just long enough to glint…
HATTR-PN
ColumnsJuggling priorities can be a struggle for family caregivers
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At…
HATTR-PN
ColumnsSleep benefits are important to peripheral neuropathy patients
The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to…
HATTR-PN
ColumnsHow I’m striving to be happy, and succeeding, years after a loss
I’m happy. That’s the best way to describe my state at this stage of my life. When my husband, Aubrey, passed away on May…
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