A few days ago, I had the honor of presenting at this year’s Patients as Partners Europe virtual conference, an industry forum centered on…
Columns
HATTR-PN
ColumnsStaying the Course Despite the Trials We Face as Caregivers
Earlier today, I had the privilege of listening to a fellow carer share the mental, emotional, and physical trials she experienced while supporting…
HATTR-PN
ColumnsThings I Wish I Knew at the Start of Our Amyloidosis Journey
It is a summer morning here in New Zealand. As I write this, a cool, gentle breeze blows through the house, and I am being…
HATTR-PN
ColumnsSearching for Peace Despite Chronic Sleep Deprivation
Sleep is an essential part of life that comes so naturally, from the moment we come into being. Yet sometimes we forget the impact that…
HATTR-PN
ColumnsThe Beauty of Healing Through Language
I can hear the shower going upstairs as I sit at my writing desk in my downstairs office. It is funny how the sound of…
HATTR-PN
ColumnsIn the New Year, I Will Focus on What Is True
2020 is almost at an end. In a few weeks, we will celebrate the holiday season, and before we know it, 2021 will be upon…
HATTR-PN
Columns‘Change the Way You Think About It’
“Surprise!” I watched familiar faces filter into the room where I stood stunned, not expecting the birthday event that was unfolding before me. I turn…
HATTR-PN
ColumnsTomorrow the Shadows Will Be Gone
I feel the coolness of the glass against my forehead. The shower is pelting warmth against my skin, but the water doesn’t feel very soothing…
HATTR-PN
ColumnsLooking for Threads of Hope When Crisis Hits
“I love you. If anything happens to me, you know where I keep the account details.” My husband uttered these parting words as I dropped…
Even Superheroes Have Sidekicks
My husband lives under the banner of his disease. This may sound hard-hitting, but it is the fact of the matter. The sooner carers appreciate…
Recent Posts
- Advocates aim to raise awareness on World Amyloidosis Day
- Most ATTR patients in China have symptoms of 2 amyloidosis types
- Improving how public transportation treats people with special needs
- Lower hospitalization risk seen with one ATTR-CM treatment in real-world study
- World Amyloidosis Day isn’t just about advocacy; it’s also a celebration