What you should know about aging and ATTR-CM
Fact-checked by The experience of living with transthyretin amyloid cardiomyopathy (ATTR-CM) can change as you get older. While the aging process may look different for everyone, you may find that your energy levels and support needs have shifted.
Understanding the complex relationship between ATTR-CM and aging, and finding ways to adapt your lifestyle, can help you feel better prepared and more confident about your future.
ATTR-CM symptoms and aging
Over time, distinguishing between what stems from ATTR-CM and what is age-related may become challenging, as some ATTR-CM symptoms can overlap with signs of aging.
Many people with ATTR-CM may already experience symptoms that are commonly associated with getting older. As a result, new or worsening symptoms may be mistakenly attributed to age when they could reflect changes in your heart condition.
Some examples of ATTR-CM symptoms to watch out for, especially if they are new or worsening, include:
- fatigue that is more severe than usual
- shortness of breath during activities that used to be more manageable
- swelling in the legs, ankles, and feet
- need to rest more frequently
- issues with balance or mobility that affect daily life
How to keep track of changes and report them
Recording any changes related to aging or ATTR-CM and communicating them to your doctor is essential to receiving the care you need. Even subtle shifts in symptoms that seem age-related are worth mentioning, particularly if they represent a change from your usual symptoms.
- Keep a journal of any new symptoms and other changes.
- Be honest and specific when discussing your feelings with your doctor.
- Don’t hesitate to ask questions and advocate for yourself.
- Consider bringing a friend or family member for support.
Managing daily life
As you age, you may need to rethink how you structure your days and manage energy levels. Other lifestyle adjustments can also complement your ATTR-CM treatment plan.
What may help:
- Schedule the most demanding tasks for when you have the most energy.
- Take frequent breaks throughout the day.
- If you’re working, try asking your employer for accommodations, such as remote work or flexible hours.
- Go to sleep and get up at the same time every day to optimize sleep quality.
- Consult a physical therapist about an exercise plan to boost your energy levels.
- Talk to a registered dietitian about a nutritious, easy-to-prep meal plan that supports your overall well-being.
- Ask an occupational therapist for advice on optimizing your workstation and your home for comfort and convenience.
There is one key aspect of living with ATTR-CM that may become even more important with aging: the need for social support. Having family and friends to talk to, accompany you to doctor’s appointments, and help you with chores can make a meaningful difference in your life.
You can also find new friends through ATTR-CM support groups, such as the Amyloidosis News Today Facebook group. Meeting ATTR-CM peers can help you feel more understood and connected.
Finally, try to enjoy life. Do whatever brings you joy. Trying a new hobby, such as gardening or doing puzzles, can help you manage stress and relax.
Overall, aging with ATTR-CM can bring new challenges, which may vary depending on your symptoms and other factors. Because symptoms of aging and ATTR-CM can overlap, keeping track of any changes and communicating them to your care team can help support informed discussions and ongoing planning.
Maintaining a strong support network and engaging in self-care can further help you manage living with ATTR-CM across all stages of life.
Amyloidosis News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.
