I recently accompanied my husband, Aubrey, to an appointment with a specialist at the hospital and noticed a sign taped to the wall in the…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsAn Amyloidosis Toolkit Helps Us Navigate Tough Times
Every week I sit at my desk and ponder what I should write about. As I stare out the window that faces my street,…
HATTR-PN
ColumnsEmbracing Our Past Strengthens Us on Our Chronic Illness Journey
Lunar New Year celebrations, which began on Feb. 1, last for 15 days. As I write this on the eve of that date, I am…
HATTR-PN
ColumnsTending to Plants Offers Me Comfort as a Caregiver
I recently counted the number of plants in my house and came up with 45. I’ll admit I’ve gone slightly overboard, but in my defense,…
HATTR-PN
ColumnsLove It or Hate It, Exercise Is Important for Caregivers
My alarm goes off at 5:30 every morning, and I mute it as quickly as possible to avoid waking my husband, Aubrey (if he’s even…
HATTR-PN
ColumnsThe Ups and Downs of Sleeplessness
Has the COVID-19 pandemic been keeping all of us up at night? According to an online forum by the Harvard T.H. Chan School of…
HATTR-PN
ColumnsWarm Weather Brings Both Discomfort and Gratitude
We have had warm summer weather here in Auckland, New Zealand, the City of Sails. It’s been clear and sunny, and…
HATTR-PN
ColumnsAs a Caregiver, I Want to Be Mindful When Misunderstandings Happen
A few days before the new year, I cleaned my backyard deck and accidentally toppled a cactus plant onto my foot. While I walked away…
HATTR-PN
ColumnsWe Must Make Lasting Memories, Through Whatever Trials We Face
Our Christmas tree is almost 24 years old, and it has traveled the world with us. I still remember the day I went shopping for…
HATTR-PN
ColumnsI’m Heading Into the New Year With an Attitude of Gratitude
As we head into the Christmas season, I want to be mindful that not all of my readers celebrate the holiday. Additionally, I know not…
Recent Posts
- ATTR amyloidosis treatment exists, but for many, it’s not accessible
- New study links TTR mutation to nerve-related ATTR and better survival
- FDA lifts hold on clinical trial testing gene-editing therapy for ATTR-CM
- Supporters to ‘Light the Night’ this month for amyloidosis awareness
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