It has been very encouraging to witness treatment advancements that target ATTR amyloidosis. Although a cure is not currently available, pharmaceutical research shows promise…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsLike David Attenborough, I Want to Use My Voice to Make a Difference
I recently watched a documentary narrated by British naturalist David Attenborough about how climate change and deforestation negatively affect animal life on our…
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ColumnsI Learned the True Value of Friendship Amid Difficult Times
“Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when…
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ColumnsAppreciating Challenges Can Help Partners Form a Special Bond
I lost my husband, Aubrey, on May 22. This period of adapting to him being gone has been somewhat challenging for me. Although I…
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ColumnsThe Importance of Thinking in Advance About End-of-life Arrangements
If you are new to my column, my name is Jaime, and I was a caregiver to my husband, Aubrey, until he passed…
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ColumnsMaking the Right Decision at the Beginning Helped Me in the End
Some time has passed since I lost my husband on May 22. For nine years, Aubrey suffered from hereditary ATTR amyloidosis. Despite the…
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ColumnsIn This Passageway of Grief, I Also Find Hope
After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role.
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ColumnsNow That the End Is Here, I Think Everything Will Be All Right
I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I…
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ColumnsWhat Time Away From My Husband Taught Me About Love
On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives…
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ColumnsMy Calendar Helps Me Remember Past Medical Events
In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness…
Recent Posts
- ATTR amyloidosis treatment exists, but for many, it’s not accessible
- New study links TTR mutation to nerve-related ATTR and better survival
- FDA lifts hold on clinical trial testing gene-editing therapy for ATTR-CM
- Supporters to ‘Light the Night’ this month for amyloidosis awareness
- Heart markers, nerve involvement linked to worse hATTR-CM outcomes