I have previously written about the importance of staying positive despite our circumstances. Whether you are a patient or a caregiver to a…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsMonths After Losing My Husband, I’m Finding My Footing Once Again
This column will be my 94th since starting “Sunrise, Sunset.” My caregiving experience has taken me through many ups and downs and countless…
HATTR-PN
ColumnsPromoting Amyloidosis Awareness to Create a Better Future
Late last week, to drive disease awareness, I took to the streets in downtown Auckland, New Zealand, and asked random people if they had heard…
HATTR-PN
ColumnsFinding Silver Linings in Life, Even After Suffering a Loss
It’s been over four months since I lost my husband, Aubrey, to hereditary ATTR amyloidosis. The vacuum he’s left behind in the lives…
HATTR-PN
ColumnsWhy Advocacy Is Important for New Zealanders With Rare Diseases
Life is full of twists and turns. I was a caregiver for nine years until this past May, when my husband passed away from…
HATTR-PN
ColumnsHow the Pharmaceutical Industry Can Help Patient Advocates
I recently attended an amyloidosis scientific conference in Heidelberg, Germany, that was a productive and empowering experience. As a former caregiver to a spouse…
HATTR-PN
ColumnsAllowing Time to Let Go After the Loss of a Husband
Two weeks after the passing of my husband, Aubrey, my four children decided that the company of a new puppy…
HATTR-PN
ColumnsCollaboration Between Patient Advocates and the Scientific Community Brings Me Hope
By the time this column is published, I will be halfway across the world, traveling to Heidelberg, Germany, for the International Symposium on Amyloidosis.
In my columns, I share my experience as a caregiver to a spouse who suffered from hereditary ATTR amyloidosis. Whenever I sit down…
HATTR-PN
ColumnsLiving in the Present Can Help Us Better Manage the Future
After I finish writing this column, I will meet a few friends for dinner. But socializing without my husband beside me still feels foreign.
Recent Posts
- ATTR amyloidosis treatment exists, but for many, it’s not accessible
- New study links TTR mutation to nerve-related ATTR and better survival
- FDA lifts hold on clinical trial testing gene-editing therapy for ATTR-CM
- Supporters to ‘Light the Night’ this month for amyloidosis awareness
- Heart markers, nerve involvement linked to worse hATTR-CM outcomes