As a caregiver to a spouse with hereditary ATTR amyloidosis, I’ve become familiar with our local hospital. The countless appointments and stays that…
Columns
HATTR-PN
ColumnsFinding a Path to Wellness for Diagnosed Patients
Having a chronic illness is never easy, both for the sufferers and their caregivers. My name is Jaime Christmas, and my husband, Aubrey, started feeling…
HATTR-PN
ColumnsIt’s Important for Caregivers to Receive Care, Too
As I write this, my husband is in the hospital due to complications of hereditary ATTR amyloidosis. Aubrey, 58, was diagnosed in 2013, and…
HATTR-PN
ColumnsChange in the Air: We’re Mulling Becoming Medical Refugees
Every so often, my husband, Aubrey, and I go through this exercise where we evaluate our circumstances in life and decide if we should shake…
HATTR-PN
ColumnsIt’s Important to Make Positive Memories Despite the Pandemic
The day arrived when COVID-19 stepped into our home via our youngest daughter. She found out that a university classmate who’d sat next to her…
HATTR-PN
ColumnsDisease Awareness Can Lead to Better Outcomes
In 2018, Gov. Bill Haslam made Tennessee the first U.S. state to declare March as Amyloidosis Awareness Month. Since then, those diagnosed with…
HATTR-PN
ColumnsLamentations Let Us Move On to Strength
Every week I write my column using my personal experience as a caregiver to a spouse diagnosed with hereditary ATTR amyloidosis. Writing demonstrates…
HATTR-PN
ColumnsValidating a Painful Experience Builds Resilience
As a columnist, I try to read and expose myself to topics that might inform my writing. Recently, I came across a phrase that piqued…
HATTR-PN
ColumnsTaking a Closer Look at Relationships Between Doctors and Patients
I recently accompanied my husband, Aubrey, to an appointment with a specialist at the hospital and noticed a sign taped to the wall in the…
HATTR-PN
ColumnsWhy Rare Disease Day Matters to the Amyloidosis Community
When I married my husband, Aubrey, I knew a hereditary and life-threatening disease affected some members of his family, but I had little other information…
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