March signals a change in seasons, often accompanied by a change in temperatures. Caregivers of patients with familial amyloid polyneuropathy (FAP) must be mindful…
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HATTR-PN
ColumnsMy recommendations for shoes that may help with neuropathy pain
Author’s note: I received no compensation for writing about the following products. I just really like shoes. My mother-in-law suffers from peripheral neuropathy pain…
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ColumnsLeaving the home where I raised a family and served as caregiver
I’ve moved! It’s exciting, but the move was daunting because of the sheer amount of work that went into clearing out items from a place…
HATTR-PN
ColumnsThese good habits can help ease symptoms of peripheral neuropathy
My mother-in-law, who has familial amyloid polyneuropathy (FAP), often experiences tingling and burning sensations as well as pain in her hands and feet.
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ColumnsWinter tips for familial amyloid polyneuropathy caregivers
Starting in late November and often lasting through March, the cold weather in much of the U.S. can be a burden for many patients with…
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ColumnsSnapshots of the mobility needs of people with FAP
A few months ago, I learned something new about my wife’s side of the family as we celebrated Thanksgiving. My mother-in-law suffers from familial…
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ColumnsFinding happiness in life after the loss of my husband
It’s summer here in Auckland, New Zealand, and as I look out the window at my weed-filled lawn, not only am I reminded that the…
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ColumnsThe ins and outs of obtaining and using a wheelchair-accessible van
Holiday travel reminds my family just how important a wheelchair-accessible van is for transporting my mother-in-law, who has familial amyloid polyneuropathy. It can be…
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ColumnsMy continued advocacy will lead to new amyloidosis treatment in N.Z.
I recently had the pleasure of attending an Amyloidosis Alliance conference in Madrid, which brought together advocates from around the world who serve…
HATTR-PN
ColumnsHow caregivers can play a role in interpreting medical information
The past few weeks have been challenging for my extended family and me. My mother-in-law, who has familial amyloid polyneuropathy (FAP), experienced a health…
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