The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to…
Columns
HATTR-PN
ColumnsHow I’m striving to be happy, and succeeding, years after a loss
I’m happy. That’s the best way to describe my state at this stage of my life. When my husband, Aubrey, passed away on May…
HATTR-PN
ColumnsNavigating the shift from winter to spring as a neuropathy caregiver
March signals a change in seasons, often accompanied by a change in temperatures. Caregivers of patients with familial amyloid polyneuropathy (FAP) must be mindful…
HATTR-PN
ColumnsMy recommendations for shoes that may help with neuropathy pain
Author’s note: I received no compensation for writing about the following products. I just really like shoes. My mother-in-law suffers from peripheral neuropathy pain…
HATTR-PN
ColumnsLeaving the home where I raised a family and served as caregiver
I’ve moved! It’s exciting, but the move was daunting because of the sheer amount of work that went into clearing out items from a place…
HATTR-PN
ColumnsThese good habits can help ease symptoms of peripheral neuropathy
My mother-in-law, who has familial amyloid polyneuropathy (FAP), often experiences tingling and burning sensations as well as pain in her hands and feet.
HATTR-PN
ColumnsWinter tips for familial amyloid polyneuropathy caregivers
Starting in late November and often lasting through March, the cold weather in much of the U.S. can be a burden for many patients with…
HATTR-PN
ColumnsSnapshots of the mobility needs of people with FAP
A few months ago, I learned something new about my wife’s side of the family as we celebrated Thanksgiving. My mother-in-law suffers from familial…
HATTR-PN
ColumnsFinding happiness in life after the loss of my husband
It’s summer here in Auckland, New Zealand, and as I look out the window at my weed-filled lawn, not only am I reminded that the…
HATTR-PN
ColumnsThe ins and outs of obtaining and using a wheelchair-accessible van
Holiday travel reminds my family just how important a wheelchair-accessible van is for transporting my mother-in-law, who has familial amyloid polyneuropathy. It can be…
Recent Posts
- Early nerve damage seen in woman with rare TTR mutation
- AInylam initiatives aim to speed ATTR-CM diagnosis, coordinate care
- Blood test for Alzheimer’s may help in making hATTR-PN diagnosis
- Women with ATTR-CM face gaps in treatment, new study reports
- Real-world study finds Amvuttra helps keep hATTR-PN, life quality stable