This column will be my 94th since starting “Sunrise, Sunset.” My caregiving experience has taken me through many…
Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
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Articles by Jaime Christmas
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ColumnsPromoting Amyloidosis Awareness to Create a Better Future
Late last week, to drive disease awareness, I took to the streets in downtown Auckland, New Zealand, and asked random…
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ColumnsFinding Silver Linings in Life, Even After Suffering a Loss
It’s been over four months since I lost my husband, Aubrey, to hereditary ATTR amyloidosis. The vacuum he’s…
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ColumnsWhy Advocacy Is Important for New Zealanders With Rare Diseases
Life is full of twists and turns. I was a caregiver for nine years until this past May, when…
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ColumnsHow the Pharmaceutical Industry Can Help Patient Advocates
I recently attended an amyloidosis scientific conference in Heidelberg, Germany, that was a productive and empowering experience. As a…
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ColumnsAllowing Time to Let Go After the Loss of a Husband
Two weeks after the passing of my husband, Aubrey, my four children decided that the company of a…
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ColumnsCollaboration Between Patient Advocates and the Scientific Community Brings Me Hope
By the time this column is published, I will be halfway across the world, traveling to Heidelberg, Germany, for the…
In my columns, I share my experience as a caregiver to a spouse who suffered from hereditary ATTR…
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ColumnsLiving in the Present Can Help Us Better Manage the Future
After I finish writing this column, I will meet a few friends for dinner. But socializing without my husband beside…
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ColumnsEarly Diagnosis, Treatment Access, and Self-advocacy Are the Pillars of Hope With ATTR Amyloidosis
It has been very encouraging to witness treatment advancements that target ATTR amyloidosis. Although a cure is not currently…