Here in New Zealand, clinicians and advocates are pushing our country’s government to update its genetic editing and…
Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
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Articles by Jaime Christmas
HATTR-PN
ColumnsConnecting with amyloidosis patients and caregivers in N.Z.
Through my roles as a caregiver for my late husband, Aubrey, and as an amyloidosis patient advocate, I’ve been…
HATTR-PN
ColumnsHow feelings of gratitude for the past are helping me move forward
It’s another stunning summer day here in New Zealand’s Waikato region. We’ve been blessed all week with clear skies and a…
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ColumnsMy late husband’s legacy lives on in my children
December is a month of university graduation here in New Zealand. All the hard work, blood, sweat, and tears conclude…
According to the Murdoch Children’s Research Institute, there are more than 7,000 rare genetic diseases in the world, mostly affecting…
HATTR-PN
ColumnsI’m grateful for my children’s support as I find love again
As a columnist for Amyloidosis News Today since October 2020, I’ve written about various topics, all related to my…
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Columns4 lessons I learned while caregiving for a chronically ill spouse
My late husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013 and passed away on May 22, 2022.
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ColumnsMoving into a new season of life with happiness
Over a year ago, I met someone. Darren James came into my life at a point when I was questioning…
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ColumnsOur local association has a part to play in World Amyloidosis Day
Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association,…
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ColumnsHow I’m living a purpose-driven life after losing my husband
Since January, the amyloidosis association I lead here in New Zealand has seen our patient numbers grow like never…