I will always remember May 12 as a special day. That’s because last week, I spent that day with my…
Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
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Articles by Jaime Christmas
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ColumnsCourage Is Necessary When Making Difficult Decisions
It has been a week since my husband, Aubrey, and I received our first doses of the COVID-19 vaccine.
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ColumnsA Little Understanding Can Go a Long Way for Rare Disease Sufferers
When you live with a rare illness, it can affect every facet of life. I am a carer to my…
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ColumnsAs a Caregiver, I’m Learning to Chase Happiness
One activity I really enjoy doing is going for coffee dates with my girlfriends. This allows me to take a…
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ColumnsWhen Faced With Trials as a Caregiver, I Embrace Resilience
Some life events create impressions that stay with us forever. Our experiences, encounters, and journeys mold our character and…
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ColumnsThe Difference Between Being a Caregiver and Being Caring
2013 was a landmark year for my husband, Aubrey, and me. That October, we received confirmation that Aubrey has hereditary…
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ColumnsLetting Go of Expectations Helps Me Embrace My Husband’s Changes
Since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, my journey as his caregiver has…
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ColumnsWhen Faced With Unrelenting Pain, There Are No Heroes
In his book “1984,” George Orwell wrote, “Of pain you could wish only one thing: that it…
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Columns3 Ways I Strive to Live Intentionally Amid Amyloidosis Challenges
As I write this, my husband, Aubrey, is undergoing surgery to remedy his congested nasal passages, which have reduced the…
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ColumnsCreate an Environment Where You Can Live Well With Rare Disease
Leading an association that supports and advocates for rare disease patients while being a caregiver to one certainly has shaped…