I am adamant about not letting the COVID-19 pandemic and the ongoing issues with my husband’s health dampen our…
Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
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Articles by Jaime Christmas
HATTR-PN
ColumnsFinding Meaning in Life With a Genetic Disease
My husband Aubrey’s hereditary ATTR amyloidosis journey is included in a forthcoming book titled “Rare Disease Drug Development:…
HATTR-PN
ColumnsI’m Embracing Optimism as We Approach the New Year
2021 has been a character-building year for me. I experienced challenges like never before, and I’m not just referring to…
HATTR-PN
ColumnsWhy Intentionality Matters When Spending Time With an Ill Loved One
I spent half the morning figuring out our plan for Christmas. In recent years, it’s been a tradition for the…
This is my 48th column since I began this providential opportunity as a writer at Amyloidosis News Today. To…
HATTR-PN
ColumnsI’ve Experienced 3 Phases of Caregiving
Life experience plays an integral role in shaping our behavior and thinking. I have come a long way from being…
HATTR-PN
ColumnsEven Before the Pandemic, We Knew Social Distancing and Isolation
New Zealand was largely able to avoid the effects of the COVID-19 pandemic, until now. The contagious nature of the…
HATTR-PN
ColumnsCooking Videos Are Helping My Husband Beat His Food Aversion
My husband, Aubrey, has begun watching cooking videos on YouTube to overcome an aversion to food and eating. We are…
HATTR-PN
ColumnsThe Importance of Making Memories and Spending Time With My Husband
As we enter the second half of October, I’m not quite sure how the end of the year has arrived…
HATTR-PN
ColumnsSearching for Activities to Do With a Sick Loved One
To all my fellow caregivers, I want you to know that I understand what you are going through, and I…