Today, I’d like to talk about caregiver burnout, which extends beyond the physical burnout of completing various caregiving tasks.
Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
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Articles by Jaime Christmas
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ColumnsDoing Life Together When Diagnosed With Amyloidosis
In my role as a leader of the New Zealand Amyloidosis Patients Association, I’ve had the privilege of forging…
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ColumnsStaying Positive as Someone Affected by Rare Disease
No matter what you’re going through or where you are, know you are not alone. Suffering from a rare illness…
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ColumnsI’m Hoping for a Better Future for Those With Amyloidosis
If you are a fresh set of eyes and have newly stumbled onto my column, welcome to the world of…
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ColumnsMy Husband and I Are Finding a New Balance in Life With Amyloidosis
I was in the car with my daughters earlier today, and as we turned onto a busy street, we saw…
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ColumnsSufferers Are More Than Their Afflictions
Lately I’ve had to remind my husband that he is not his disease. Aubrey was diagnosed in 2013 with…
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ColumnsWhy It’s Important for the Rare Disease Community to Avoid Isolation
By the time this column is published, nearly two weeks will have passed since the kick-off of the two-day New…
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ColumnsLooking at Life’s Challenges Through a Different Lens
I often write about the challenges I face as a carer to a spouse afflicted with hereditary ATTR amyloidosis.
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ColumnsI Share My Experience to Foster Compassion in the Rare Disease World
I count myself very fortunate to be in a position where I can speak to readers. Every week I sit…
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ColumnsUnderstanding the Guilt That Can Accompany Hereditary Disease
Our amyloidosis patient association here in New Zealand often holds routine catch-up sessions with the patients and carers that…