Through my roles as a caregiver for my late husband, Aubrey, and as an amyloidosis patient advocate, I’ve been transformed. I once assumed that…
Sunrise Sunset — Jaime Christmas
Jaime Christmas is a patient advocate and columnist based in Auckland, New Zealand, with her cheeky doggie, Akira. She was a caregiver to a spouse who was afflicted with hATTR amyloidosis. Now she fights for equitable treatment and support for diagnosed patients and their caregivers. Although she now lives without the daily challenges of being a caregiver since her husband’s passing in 2022, she hopes to be still an encourager and listening ear to those presently walking the journey she knows only too well.
HATTR-PN
ColumnsATTR amyloidosis treatment exists, but for many, it’s not accessible
A transthyretin amyloidosis (ATTR) diagnosis is life-altering. This progressive disease causes abnormal protein deposits to slowly accumulate in structures such as the heart and nerves. Left untreated, ATTR cardiomyopathy (ATTR-CM) can shorten life expectancy to within a few years after diagnosis. My late husband, Aubrey, was diagnosed with…

HATTR-PN
ColumnsHow feelings of gratitude for the past are helping me move forward
It’s another stunning summer day here in New Zealand’s Waikato region. We’ve been blessed all week with clear skies and a warm breeze blowing through the…
HATTR-PN
ColumnsMy late husband’s legacy lives on in my children
December is a month of university graduation here in New Zealand. All the hard work, blood, sweat, and tears conclude in a cacophony of salutations…
According to the Murdoch Children’s Research Institute, there are more than 7,000 rare genetic diseases in the world, mostly affecting children. Additionally, about 300 million…
HATTR-PN
ColumnsI’m grateful for my children’s support as I find love again
As a columnist for Amyloidosis News Today since October 2020, I’ve written about various topics, all related to my experience caring for a spouse…
HATTR-PN
Columns4 lessons I learned while caregiving for a chronically ill spouse
My late husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013 and passed away on May 22, 2022. Those nine years were spent…
HATTR-PN
ColumnsMoving into a new season of life with happiness
Over a year ago, I met someone. Darren James came into my life at a point when I was questioning whether I could build a…
HATTR-PN
ColumnsOur local association has a part to play in World Amyloidosis Day
Oct. 26 isn’t just another day; it’s World Amyloidosis Day. As a leader of the New Zealand Amyloidosis Patients Association, I’m excited to use this…
HATTR-PN
ColumnsHow I’m living a purpose-driven life after losing my husband
Since January, the amyloidosis association I lead here in New Zealand has seen our patient numbers grow like never before, primarily because of newer …
HATTR-PN
ColumnsFinding purpose helped me navigate grief after losing my husband
It’s winter here in New Zealand. I woke up to a thin sheet of ice covering the deck, staying frozen just long enough to glint…
HATTR-PN
ColumnsHow I’m striving to be happy, and succeeding, years after a loss
I’m happy. That’s the best way to describe my state at this stage of my life. When my husband, Aubrey, passed away on May…
HATTR-PN
ColumnsLeaving the home where I raised a family and served as caregiver
I’ve moved! It’s exciting, but the move was daunting because of the sheer amount of work that went into clearing out items from a place…
Recent Posts
- Early nerve damage seen in woman with rare TTR mutation
- AInylam initiatives aim to speed ATTR-CM diagnosis, coordinate care
- Blood test for Alzheimer’s may help in making hATTR-PN diagnosis
- Women with ATTR-CM face gaps in treatment, new study reports
- Real-world study finds Amvuttra helps keep hATTR-PN, life quality stable