Taiwanese people with familial amyloid polyneuropathy (FAP) have a significantly altered composition of intestinal bacteria relative to their unrelated healthy family members, a new…
hATTR-PN
HATTR-PN
ColumnsJuggling priorities can be a struggle for family caregivers
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At…
Getting genetic counseling can encourage people at risk for hereditary transthyretin amyloidosis to have genetic testing and know they have the option to seek early…
Rising levels of a protein called neurofilament light chain (NfL) in the blood may indicate nerve damage due to familial amyloid polyneuropathy (FAP) even…
Wainua (eplontersen) is able to slow disease progression and improve life quality for people with familial amyloid polyneuropathy (FAP) regardless of nutritional status,…
A new mutation in the TTR gene was identified as the cause of late-onset familial amyloid polyneuropathy (FAP) in an elderly man in Argentina,…
Tegsedi (inotersen) safely and effectively slowed the progression of polyneuropathy, or damage to multiple nerves, when taken for up to about six years for…
HATTR-PN
ColumnsSleep benefits are important to peripheral neuropathy patients
The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to…
HATTR-PN
ColumnsHow I’m striving to be happy, and succeeding, years after a loss
I’m happy. That’s the best way to describe my state at this stage of my life. When my husband, Aubrey, passed away on May…
Four years of treatment with Onpattro (patisiran) safely prevents disease progression for most familial amyloid polyneuropathy (FAP) patients, according to a retrospective real-world study…
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