“Lots of people want to ride with you in the limo, but what you want is someone who will take the bus with you when…
Sunrise Sunset – a Column by Jaime Christmas
HATTR-PN
ColumnsAppreciating Challenges Can Help Partners Form a Special Bond
I lost my husband, Aubrey, on May 22. This period of adapting to him being gone has been somewhat challenging for me. Although I…
HATTR-PN
ColumnsThe Importance of Thinking in Advance About End-of-life Arrangements
If you are new to my column, my name is Jaime, and I was a caregiver to my husband, Aubrey, until he passed…
HATTR-PN
ColumnsMaking the Right Decision at the Beginning Helped Me in the End
Some time has passed since I lost my husband on May 22. For nine years, Aubrey suffered from hereditary ATTR amyloidosis. Despite the…
HATTR-PN
ColumnsIn This Passageway of Grief, I Also Find Hope
After nine years of being a caregiver to a husband afflicted with hATTR amyloidosis, I can no longer lay claim to having that role.
HATTR-PN
ColumnsNow That the End Is Here, I Think Everything Will Be All Right
I am sitting across from my husband, Aubrey, who’s on his last leg of life with us on earth. When I look at him, I…
HATTR-PN
ColumnsWhat Time Away From My Husband Taught Me About Love
On April 1, Malaysia’s borders reopened to international travelers following COVID-19-related closures, and I finally had the pleasure of visiting my family who lives…
HATTR-PN
ColumnsMy Calendar Helps Me Remember Past Medical Events
In my work as a patient advocate for the New Zealand Amyloidosis Patients Association, I occasionally need to assemble content for the awareness…
HATTR-PN
ColumnsTaking a Break From Caregiving to Visit Family
After almost three years of not seeing my family, I’m finally back in Malaysia to spend some quality time with my father, siblings, and children.
HATTR-PN
ColumnsHow My Husband and I Feel About Being Offered Palliative Care
For the first time since my husband, Aubrey, was diagnosed with hereditary ATTR amyloidosis in 2013, his care team brought up the subject of…
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