The daily life of a familial amyloid polyneuropathy (FAP) caregiver isn’t always one of set routines. With the nature of the ailment and its…
Rumination and Response - a Column by Ezekiel Lim
HATTR-PN
ColumnsResponding to my mother-in-law’s rheumatoid arthritis diagnosis
In my last column, I mentioned that my mother-in-law was recently diagnosed with rheumatoid arthritis. She already suffers from the symptoms of familial amyloid…
HATTR-PN
ColumnsWhy patients should tap into a sense of purpose in the new year
For neuropathy patients and caregivers, having a purpose in life may go a long way toward helping us manage peripheral neuropathy. Many familial amyloid…
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ColumnsHaving a backup plan for when caregivers get sick
About a month ago, my father-in-law came down with what seemed like a cold. But his condition gradually worsened, which sent him to the hospital.
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ColumnsHow neuropathy caregivers become a proxy for emotional suffering
For neuropathy patients, especially those who have familial amyloid polyneuropathy (FAP), the caregiver may become their arms, legs, eyes, and ears. While that may…
HATTR-PN
ColumnsHow caregivers can help neuropathy patients enjoy cooking
A diagnosis of familial amyloid polyneuropathy (FAP), or the onset of peripheral neuropathy symptoms, may cause patients to worry about missing out…
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ColumnsHow my mother-in-law’s dog helped her cope with FAP
The companionship of dogs and other pets may benefit patients by helping them cope as they manage the symptoms of familial amyloid polyneuropathy (FAP).
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ColumnsJuggling priorities can be a struggle for family caregivers
As I mentioned in my last column, my mother-in-law’s peripheral neuropathy symptoms seemed to take a turn for the worse in April. At…
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ColumnsSleep benefits are important to peripheral neuropathy patients
The past month was challenging for my family. My wife and I were expecting the birth of our new child at any moment, according to…
HATTR-PN
ColumnsNavigating the shift from winter to spring as a neuropathy caregiver
March signals a change in seasons, often accompanied by a change in temperatures. Caregivers of patients with familial amyloid polyneuropathy (FAP) must be mindful…
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